OUR charity of the year.
Rett UK is a national organisation based in Bedfordshire.
We are proud to support the work of this wonderful Charity with fundraising events, exposure and sponsorships.
The clue to this little girl’s future is in her hands. But the family don’t know that yet..
Rett syndrome will rob Rosie of her ability to walk, talk & feed herself. Rosie & her family are going to need our help. We can be there for them when the enormity of what they are facing is revealed.
Although present at birth, it is usually undetected until a major regression occurs at around two years of age, when children lose acquired skills. The majority will need lifelong 24/7 care.
Rett UK provides emotional and practical support through a national telephone helpline, local family led support groups and a parent-to-parent contact network all so crucial in reducing isolation. Access to high quality seminars from the UK’s leading experts on Rett syndrome at our regional events provides families and professionals with up to date, accurate information in subjects like epilepsy, spinal surgery and communication, helping them with management of the disability.